It seems only yesterday that my sister (in-law) was moving around the care home — a flower in her hair — randomly greeting people. Since then she’s been diagnosed Stage 7 of 7 on the dementia scale: Very severe cognitive decline. In this stage a person “begins to lose speech and may just have guttural sounds; toileting and feeding require assistance, the ability to walk begins to decline. There is a marked disconnect between the body and the brain, and the individual exhibits a general rigidity.”[1]
A cousin phoned, in tears after finding my sister in a wheelchair, unable to walk, incoherent, dressed in nothing but a diaper. Soon afterwards, an email to say that she had a fall overnight, was taken to intensive care with suspected frontal-lobe seizure and/or cerebral hemorrhage.
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Barely comprehending, I sit still, turn inwards. How does heart-mind-body respond to all this?
My face feels as if made of steel, jays wired shut, lips glued together. Bringing awareness to the breath: shallow and hasty. Remembering to “welcome everything”, I let awareness sink deeper into the chest. Simultaneously, pain arises in the brain, near the front.
(The frontal lobe deals with Movement of the body, Personality, Concentration, planning, problem solving, Meaning of words, Emotional reactions, Speech, Smell.[2] Home of Alzheimer’s, monkey-mind chimes in.)
Visualizing brain and heart as one, the face begins to melt at the edges. Stiff neck begins to release like bubbles up the side of a champagne flute. A faint thawing in the belly, into the legs. Breathing in, breathing out.
Suddenly the alarm rings to announce time for meditation on zoom. Put aside personal matters. A dear Irish friend is already waiting, sitting outside, the evening sun sinking behind the hills at his back. “Mourne Mountains they’re called, County Down”, he tells me. Of course they are.
Others join and we sit in silence. Muscles of steel melt into tears. May my sister be free from suffering.
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“The human body is fragile and vulnerable, our life hangs by a breath. / Holding this thought in mind, I attend to each inhalation and each exhalation.” (One of “Nine contemplations of death” by Atiśa, Indian Buddhist scholar, 982 – 1054 CE.) [3]
[1] The Global Deterioration Scale: Reisberg Alzheimer’s Stages. [2] Brain regions: Ask a biologist. [3] This version.
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You are not alone Peter. Many of us are processing the same feelings and emotions, as we watch our loved ones fail, as they become prisoners in the bodies that are failing them. We mourn twice. It is hard. Sending love and hugs of comfort.
Always sending my love and friendship during this difficult time dear Susan.
Thank you for this. I share your grief, from the inside, out. Thinking of you.
Oh Peter, heartbreaking., wrenching grief, we hold alone. Watching breath to remind us of our vulnerability. May we be free from suffering.
My heart goes out to you dear Peter during this difficult time with love.
May she be at peace. Her strength can now yield to the hands that will guide her home.
Dear gentle Peter,
I am so sorry for your pain and sorrow, so grateful for your beautiful sharing and expression of it. May your beloved sister see light on her passage and feel love. And may you both find peace.
Julie
Peace to you dear man.
Keeping you and your sister-in-law in my heart.
Ruth
Peter, we are so sorry to hear this. Yes, may she be at peace and free from suffering. We are meditating for her – and you – and sending Loving Kindness.
owch.- such a lot to intake – hope the caring comments above and on the way, help even the load
<3
Ohh, so tough, I’m sorry for the pain and your hurt hearts. May your tender hearts be held in a warm embrace and receive the loving kindness and compassion being sent your way
Ohhh, so tough, I’m sorry for your hurt hearts. May your tender hearts be held in a warm embrace and receive the loving kindness and compassion being sent your way 🙏